The Diagnosis and treatment plan!

We got the results from the Dr. about the last 2 scans. They were clear also!!!!!!
That is great news. So she has Embryonal rhabdomyosarcoma stage II. The prognosis is excellent!! There is over a 92% chance that once its gone its gone!! Those are some really good odds! We are very blessed! He said that she has one of the most curable kinds you can have, and he is very optimistic that it will all turn out good! I know in my heart that she will be fine!! Its just going to be a long road to get there.

We went to talk to the Oncologist on Tuesday. They have decided that she will have 40 weeks of Chemotherapy!! (I can't believe how long she will have to endure this, but he said this is how they treat it) She will go for treatments once a week at the Dr's. office which is great! She won't have to go to the hospital for any treatments, I think this will be so good for her a lot less scary! The treatment room has all kinds of board games, crafts, TVs game systems, snacks. So she will go and hang out and have her treatments. I hope its that easy but I am not naive I know there are going to be some bad days , and some really bad days but we will do whatever we have to to make it as easy for her as possible.
She will have 2 kids of chemo drugs. One is vincristine (Oncovin, Vincasar) that she will get every week. and dactinomycin (Cosmegen, Lyovac Cosmegen) which she will get every 3 weeks. She will get her treatments through a port that she had put in a couple of days ago. That surgery went well she was a trooper once again. She is still sore but not to bad today. Everyday it hurts less.
She had the port put in so that she doesn't have to have an IV anymore they can give her meds through it, take blood, blood transfusions (if she ever needs one) and can get antibiotics (if ever needed). The port is little and you can't even see it, she doesn't even need to cover it to shower or swim or anything. I think this is the best thing for her in the long run. No more Sticks with needles!


She is also going to need 4 weeks of radiation. so that's going to be 20 times. 5 days a week for 4 week. Luckily the sessions will only last about 10 minutes. We still don't have an exact plan we won't know till next week.

But she has her first Chemo treatment in 2 days. She is of course scared! its the unknown. Everyone keeps telling me that kids are so resilient and strong. So far that is absolutely true. She has been so brave, I am so proud of her. I just wish she didn't have to do this at all.