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Thursday, July 29, 2010

Today i am sad and more than a little angry!

I found out today that my baby has Lyme Disease :( So needless to say today is a stressful day for me!

Now I will tell you the story....

About a year ago she woke up with a rash on her arm, (the typical bullseye), so I took her to the Dr. We had just moved to this state so this was the first time we were seeing this dr. They looked at it and told me it was a spider bite. I asked if he thought it could be Lyme, we were just living in the woods. He tells me NO give her Benedryl if the rash goes away then it is not Lyme. So I believe him give her the meds, and it does fade, but not go away. The Dr. calls a couple of days later to find out how she is,I tell him the rash faded and eventually went away with the meds but does he think we should test her for Lyme anyways. He says NO NEED its not Lyme!

So now a couple of months go by with no symptoms then she starts to get these really high fevers like 103-104 for days!!!!!! I take her to another dr. in the same practice she says its a virus it will go away! goes away but comes back in a couple of days, back to the drs again, this time they test for UTI sure enough its positive! go through a round of meds, but comes back again, another round of meds!! So I mention the bite again should we do a blood test? NO its just a UTI. I felt so bad for my baby going through this being sick and there is nothing I can do to help.

So at this point I have had it so I switch pediatricians. Now at this point she is complaining of her legs aching pretty often. Go to them tell them the whole story. They say ok lets test for UTI again sure enough its positive ANOTHER round of meds. I again mention the bite should she be tested? NO its just a UTI or a virus no need. AGGGGG so angry.

I switch Dr. again, this time I tell her the whole story again, she says if you think we should test her then lets. Sure enough yesterday the test came up positive for Lyme!! So the poor kid has had it over the period of a year and a half and they had never even tested her. I am LIVID!! I am with my kids 24/7 a dr. only sees them every 6 months. I think I know my kid better then them but they didn't listen! Finally I found one who listened to me and didn't think i was overreacting.

I have had a feeling in my gut that something was wrong!! But I believed these professionals and what they have been telling me. I was sadly mistaken. I totally feel like this is my fault I should of made them test her when I had a gut feeling about it.

Now we will try the 3 weeks of antibiotics. But I feel that she needs to see a specialist. it was not diagnosed for a long time. I know there can be long term effects from not getting treated soon enough. I hope that because she is a kid she is more resilient and can heal easier then adults. I am just praying that there will be no long term damage done to my poor baby! I feel like a horrible mother :(

I know that I should be thankful that I know what is wrong with her and that it can be treated, but I am her mom and of course I am VERY concerned. I know there are kids out there that have it A LOT worse off then my baby. So lets all send positive thoughts or prayers to those kids out there that need some extra lovin!

1 comment:

Cristina said...

I'm so sorry. She will be okay, I know!

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